Parkinson's & A Visit To ER & Personal Update

Brave post again, I have also had vertigo and you describe it very well unfortunately hope you feel better .

I’ve struggled with extreme dizziness and imbalance that keeps me from walking for two years. Not vertigo. Neurologist keeps saying it’s PD.
Physical therapy hasn’t helped. It’s going to undo me.😢 I’m 74. At the age when doctors start to just phase out interest in me.

Glad you are better today! I had Covid in Jan 2022 along with the rest of my family. My only symptom was severe vertigo….oh my gaaaad it was brutal. Struggled for weeks. I have heard that vertigo is a symptom of PD sometimes, too, so I’ve wondered if I might battle it again. So far, so good.

Ticks freak me out too ever since I got one stuck on the back of my neck and my Gran battled to get it out umpteen years ago. Horrible things! But you did make me laugh! Hope you don’t get any more dizzy spells.

I often get vertigo in heavy pollen times. The first couple of times, I ended up in an ER also. The ER staff told me people often present to the ER thinking they are having a heart attack or stroke.
And yep! Saw the tick, climbing up your shoulder during the video. Apperantly, you couldn't hear me trying to get you attention. 🙂

MJ and I say hi. Ew the tick!! Noooo 😮

I’m bummed to hear that you’re having such a rough time lately. I can completely relate, as I have been going through a bumpy patch as well. Here’s to a better day tomorrow.😊

Glad all turned out well. Vertigo is no fun. Mine was from an ear infection 😫. Be safe.😊

Um, you can’t kill a tick by stepping on it.
I had both an MRI and a SPECT scan to confirm PD. Nerve wracking to say the least.

Has anyone mentioned the Epley maneuver it Hass to do with your inner ear and realigning the little rocks that help us with our balance I had horrible vertigo one time and that cured me they just manipulate your head and get the rock back in the right place it sounds so funny

Vertigo is so disruptive. Did anyone check your ears? There is a flipping maneuver that has always worked for me to send the "rocks" out of the canal fluid. Stops the spinning quickly if you can figure out which ear is the problem.
The documentary was interesting, and balanced, even with a lot of focus on DBS. While watching it occurred to me that I'll probably never be eligible if it ever came to that because of a titanium aneurysm clip on the carotid artery behind my left eye. On the positive side, no brain surgery for me ever again!.😅

Sorry to hear about the vertigo, Jenn. When I had that it was due to low blood pressure. Carbodopa-Levodopa can cause this. My neurologist recommended wearing compression socks and adding a lot of salt to my diet. It worked!

Glad to hear you are better. I just watched the documentary. Thanks for sharing. Very informative and inspiring!

I have vestibular neuritis, which I’m sure to some may present as vertigo, it’s different testing (a VNG). Yes. It has further interfered with balance, gait, eye tracking etc. I’m currently in PT for it. If your symptoms persist it may be worth an ask.

Have a glas of Guinness.

It’s a frustrating situation…. So often it’s only possible to tell you what you DON’T have and not what you DO have.

Stay tick free.😂 Hope you feel better soon 💕

So glad to hear it wasn't anything serious! Next time we talk, remind me to tell you about my experience from "giving" too much of myself and how I handled it. I'm a super empathetic person so I have to be careful not to get my energy zapped. When I'm in the MRI, I keep my eyes closed and then when the noise starts, I mentally put myself in a nightclub and the noise is like EDM. ha ha ha! I would have died if I saw a tick on me! lol

I had an ER visit last year for dizziness after a heavy gym workout. I initially thought it was a heart issue, but it turned out to be dehydration. ER doctor told me that dehydration is number one cause of dizziness. He told me a PwP must be aware to stay hydrated especially if you have BP fluctuations. Feel better!

Glad you got rid of that tic! 😱 I came off a hike with one burrowed in my neck and hubby pulled it out as I was freaking out. Luckily the whole thing came out and nothing was left under my skin.
The vertigo must really be frustrating, hope they can figure it out. Good old Parkinson’s…..just keeps sending us these gifts…..🤦‍♀️ Take care! I always look forward to your videos. ❤

Oh gosh! We’re living in parallel realities my friend. So many ticks this year! I’ve found so many crawling around the house carried in by our sweet pup. Also, my imbalance and dizziness is off the charts the last 3 weeks, and OB just found a second fibroid, have an appointment to discuss surgery… my imbalance “dizziness” was my first symptom of PD, and is still the most debilitating symptom that I experience when it’s bad. Walking very slowly with a cane these days. Starting PT soon

I woke up Easter Sunday with dizziness. Not unusual so I tried to shake it off but as the morning went on it got worse. I tried going back to sleep, stretching, getting some fresh air but nothing helped and things were spinning so fast I couldn't see to dial my phone. I used my Alexa to call my ex wife. I told her I think I'm having a heart attack and she thought i was having a stroke. Went to the ER and after all the tests they said they find nothing wrong. I was diagnosed with PD 1.5 years ago. Finding it hard to deal with all this but finding I'm not alone in this battle. Thanks for sharing :)

My Parkinson’s journey began with a stay in the hospital due to severe vertigo. It was finally diagnosed as “vestibular neuritis” which is an infection on the vestibular nerve in the ear. After MRI CAT SCAN blood work, pt they could not find anything else. I did PT after being released my balance returned to normal but the tremors began and 6 months later on my 50th birthday I was diagnosed with PD. All my doctors said the vertigo was not related to PD it just was strange timing, coincidence. The good thing was that the vertigo introduced me to an amazing neurologist who is now my primary neurologist. Hope you feel better soon.

I found your channel just recently. I have had PD for 31 years, dx at 35. Things like vertigo and confusion can indicate autonomic disfunction, which is a part of ongoing PD. Blood pressure regulation is compromised, leading to BP too high or low. Medication can be very effective but can take a while to get right. The biggest risk is low BP leading to falls. I hace found learning to play a musical instrument to be very beneficial in combating general PD problems. Any sort of drum is a great first choice. My second favourite would be a fretless string instrument such as a cello or fretless bass guitar. i play, rather poorly, about 30 different instruments.

Hey girl! I’m so happy you are feeling better ❤❤ great job battling through these tough times. MRI’s definitely scary! I only had one for pre dbs surgery which was canceled, but ya very loud and unnerving 😮. Just be you and do what you feel is right in your heart ❤🇨🇦👊🏽

Hi 👋 ugh that’s a lot of stress. I hate MRI’s

Had trouble with dizziness about 3 years before my PD Dx. Some other things, like messy handwriting, cropped up about the same time and I’m pretty sure that’s when the dopamine started taking a plunge. Hope everything worked out ok for you — and with tick situation … we get ‘em in Virginia this time of year, too.

I’m 66 years old and diagnosed 2-1/2 years ago. Long before my diagnosis I was having regular issues with vertigo. Some not so bad, but many were awful episodes. My vertigo specialist never came up with a reason for the vertigo but said I had Ménière’s disease. After hearing from so many PD people I’m pretty sure it was early symptoms of Parkinson’s.

Neil Diamond 💎The Rock and Roll Hall of Famer announced in 2018 that he had Parkinson’s, which causes him tremors, slow movement. He is such a good person. It was a pleasure to meet him while I worked with a major airline before I retired. I will also never forget meeting Robin Williams. Such an unforgettable, wonderful person.
RIP. Robin.🕊🕊🌹🌹

Did you take the jab

Sorry about the vertigo. Your reaction to the tic was amusing...I probably would have ripped my shirt off right then and there.

I had the same thought about my insurance company (I’m to expensive) then I remembered UnitedHealth Group reported $22 billion in 2023 profits. 😮

Hoping all is well. It's been awhile since a video. 👍🙏🏻

? Please call? What is going on?

bonjour Jennifer

Glad to see you feeling a little better. I have a rare blood disorder too, and with PD, I do have debilitating hours during the day with vertigo, shortness of breath, and a headache esp with bad sleep. I just decided to be kind to myself and rest in bed when this happens. You are not alone here, and thanks for sharing your story! We are all in this together!!