Ankylosing spondylitis

Hi

I also have Ankylosing Spondylitis. The real tragedy is that you can prevent any fusing by sticking to a low starch diet! It sounds random but the science behind it is that AS is cause by an autoimmune response to the klebsiella bacteria in the gut. The bacteria feeds on starch, thus if you eliminate the food source there is no immune resource. There is a great community on Facebook called the low/no starch diet for ankylosing Spondylitis. Thousands of people are managing their AS well. The medical world is a very conservative field though and so they want everything to be proven through peer reviewed studies. There have been some done in China and the UK. But I'm certain that the pharmaceutical companies prefer people to take anti inflammation pills instead. So there is no incentive to fund such studies. But the internet is making the information available now... this is not medical advice and I am not a medical professional. Talk to your doctor for professional help. This is just my personal anecdotal opinion

Can AS cause tingling in the feet? Ive had AS since around 2009. The tingly feet has been going on a year now.

How does one obtain an evaluation for AS?

I have AS about the same age as Ray. Im an ex coal miner and in pain most of the day I feel for you Ray im existing with this horrible disease but function better in a warm country like Spain. good luck mate keep smiling. I thought rigor mortis happened after we die not before

As I spent my life in construction industry I just wrote off all the pain and injuries over the years to damage due to this work. At about 45 or 50 I then noticed a quicker reduction in my ability to flex in different directions and loss of agility( something that was never very good really) . I was checked for the common genetic markers which did not exist , apparently this is more common now and the lack of them does not mean you do not have AS.
The tests covered here and the results mimic my own restrictions.

I have every single symptom at 20 :’)

I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip and hand they came back as nothing showing, my neck and shoulders came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip and right down my left leg, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet, if i have over done my upper body is tight and i have difficuilty breathing. After work i feel as though i have been hit by a bus, my heels are so so sore. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. Does anyone ever expierence pain i there achilles and calfs. Im am so depressed every night i say to myself maybe tomorrow i will feel better, i have been living like this for years now wondering if the next day will be better and it never is. I try to explain to people how sore and fatigued i am but its like they just dont believe me or understand how i am feeling. Often feel like giving up, if it wasnt for my family i would just give up.ARE ALL THESE SYMPTOMS SIMILAR TO HOW OTHER PEOPLE FEEL????

My grandfather and his sister had an extreme case i believe. It just looked painful.

I have been diagnosed with two auto immune disease and have always been scolded by my mom to stand up straight. I was. I also have pectus carinatum, my son as well but he has had the corrective surgery. My lower back has damage . I’ve tried to tell my rheumatologist. I believe I’m going through what my grandfather and his sister went through as well.

Does anyone know how to get help or get someone to really listen? It’s so painful. My poor grandfather complained about his back quite a bit. 😢 I hope medicine can progress and doctors really listen to their patients.

I get backpain. Sacroiliac pain. Bowel inflammation (constant loose stools diarrhoea) itching all over body especially after water or even sweat and some heart pain at times and finally some migraine and eye problems when a full flare. I find hot showers and lifting weights helps.

This video is really helpful. You can also try Curcumin capsule, bone support, joint aid plus etc. from planet ayurveda. Their medicines are 100% natural and effective without any side effects.

thanks beautiful

I had spinal fusion 15 yrs ago at L 5 S 1, it failed, ive been dealing with "Failed back surgery syndrome" nightmare !

I have managed many Ankylosing Spondylitis patients effectively by Planet Ayurveda’s herbal combination of - Bone Support, Boswellia Curcumin, Yograj Guggul and Coral Calcium Complex.

this is me for 30 yrs now. I am 49 yrs now. so much pain thorax and neck and hunched over. Nothing seems to help.

I'm a 56 year old female living with this, I just found out there's a link with AS and chronic and large kidney stones. Urologist told me. Another thing I have to deal with for the rest of my existence. Cannot go any higher than DMARDS, my body won't tolerate biologics. I have had sepsis twice, trying to tolerate it. Too much else wrong and where ever their a weakness theirs a fair chance of Sepsis setting up camp.