CHARGE Syndrome Foundation Promo Video

My 3 month old little girl has recently been diagnosed with CHARGE. I feel so helpless and alone sometimes not knowing what to expect with this rare issue. Her biggest problem is that she is still only 4 pounds at 3 months and the doctors can't figure our how to make her gain weight. She has had 2 gtubes and several special formulas and nothing is working. At this very moment im laying in a hospital bed with my beautiful daughter feeling a little more hopeful that in not alone after watching this video. Thank you for spreading not only knowledge but hope....

Okay, I know I'm just some rando, but Jake looks good in those hearing aids.